There are moments in my each day life once I get a sense of tension and potential loss, wondering how I could possibly get by without my husband, who can be my caregiver. We’re each now in our 70s, living with incurable conditions. Like all coping with the aging process, we live knowing life will come to closure, and most certainly, not at the identical time.
Allowing myself to even take into consideration this scenario creates a sense of panic. As I live with Ehlers-Danlos syndrome, my husband has been taught how you can do some manual techniques that help me have higher quality days. Each morning, he’s now capable of reposition a subluxated hip, shoulders, sacrum, and upslips. The great thing about starting a day with the body in a greater position is magical for me. So, are you able to imagine what my life can be wish to get up alone, not receive his treatments, and know that the body will proceed to sublux throughout the day without correction? Add on the deep loss and grief of missing the love and companionship of the person I actually have spent nearly 50 years with. All of it just seems too overwhelming.
I actually have needed to learn to just accept that is the life I’m expected to live, to not surrender, and be open to trying to find ways to enhance the standard of life with my incurable condition. But, it has at all times been with the love and support of my husband by my side. I’m wondering incessantly how anyone is capable of address chronic conditions totally by themselves. My heart breaks for them having to dig deep to search out their peace and happiness under these circumstances. It sure looks as if a tall order and one which not everyone seems to be capable of tackle and work with.
So, as I remain the lucky one which is capable of receive this each day help living with my EDS, the very best I can do is to stay grateful and rejoice my success. When and what comes next in life is just not in my control. All I can control is my attitude. May all of us find the inner strength to learn how you can cope when loss comes our way.
May life be kind to you.
